Beyond the Diagnosis: Autism Across the Life Span conference October 14-15, 2010: Sessions
Beyond the Diagnosis: Autism Across the Life Span October 14-14, 2010

Presentations

This conference was hosted jointly by the University of Kansas Center For Autism Research and Training (K-CART) and Johnson County Community College.

Presentations are linked to workshop titles.

FRIDAY

Conference Welcome Friday Welcome F 830

Friday Workshops

PRESENTERS SESSION TITLE DESCRIPTION DAY TIME
Jeannie Holverstott, M.S., Responsive Centers S.O.S.!: Promoting Social Skills in Individuals with High-Functioning ASDs

Individuals with autism spectrum disorders (ASDs) chronically struggle with socialization. Some attempt to socialize but appear awkward or inappropriate. Some recede to the background due to anxiety. Some utilize the wrong skill in the wrong setting. All need well-designed direct instruction and copious amounts of practice to learn and utilize appropriate skills. This course is designed for students who have basic knowledge of ASDs and who want to explore the social struggles related to ASDs, with considerable focus on individuals with Asperger's Syndrome. We will review diagnostic criteria, focusing on social manifestations and the impact of co-morbid conditions. We will discuss strategies for social intervention in the home, school, and community. We will briefly assess the benefits of medication in developing pro-social behaviors.

F 900
Wendy Parent-Johnson, Ph.D., CRC, Kansas University Center on Developmental Disabilities The Art of Job Matching: Customizing the Placement Process A good job match is critical for job success. This session will describe customized employment practices that promote creative job placement outcomes. Techniques for negotiating carved and created job niches and self-employment ventures based upon the passions and skills of the individual and the needs and preferences of the employer will be highlighted. Job site training and support strategies to enhance job performance, integration, and retention will be discussed. Audience participation will be a major focus of this presentation. F 100
Jill Koertner, M.S., BCBA, Center for Child Health and Development, University of Kansas Medical Center; Kansas Center For Autism Research and Training Early Intensive Behavioral Intervention: Why It's Important & How to Do It Well In this workshop, we will cover why there is such a push for early diagnosis/treatment for children with autism and spend time on what a good behavioral intervention should look like, from the methodology of choosing good reinforcers to the logistics of finding and hiring staff. F 900
Pam Neidert, Ph.D., BCBA and Claudia Dozier, Ph.D., University of Kansas Department of Applied Behavioral Science Functional Behavioral Assessment and Function-based Treatment for Reducing Challenging Behavior The presentation will include an overview of (a) learned functions of problem behavior; (b) methods for conducting functional behavior assessments including anecdotal, descriptive, and experimental approaches; and (c) reinforcement-based approaches to treatment.  In addition, treatment examples and case studies will be provided to illustrate assessment and treatment.  Finally, future directions of functional analysis and its application will be discussed. F 100

Friday Sessions

PRESENTERS SESSION TITLE DESCRIPTION DAY TIME

Rene Jamison, Ph.D., Clinical Assistant Professor, Center for Child Health and Development, University of Kansas Medical Center

Matt Braun, M.A., CCC-SLP, Faculty, Center for Child Health and Development, University of Kansas Medical Center

Promoting Social Competence in Adolescents with Autism, Part 1 This presentation provides an overview of evidenced based strategies for promoting social skills and social competence in adolescents. Presenters will provide a discussion of strategies as well as rationales for including these strategies within programs for individuals with ASD. Expect example curriculum, strategy demonstrations and models, evaluation tools, pictures, support materials and documentation in scrapbooks, videos, and participant data, as well as many other helpful resources. Look forward to information about utilizing technology to promote social competence among this population. F 900
Hilary C. Boorstein, Ph.D. Children's Mercy Hospital and Clinics, Section of Developmental/Behavioral Medicine Sexuality and Autism This presentation will focus on issues of sexuality as pertains to individuals with ASD across the lifespan. Topics will include physical development and behavioral changes during puberty, strategies for teaching about puberty and sexuality to individuals, behavioral management of inappropriate sexual behaviors at home and in the schools, and research about sexuality and individuals with ASD. This presentation will address how these issues affect both genders as well as individuals with a broad range of abilities, and will provide practical suggestions and interventions for home, school, and the community; resources will also be provided. F 900
Kathy Smith, RISE Program Manager, Children's Mercy Hospital
Kathy Boxx, Parent
Elaine Schmidtberger, Parent
Project RISE (Reaching for Independent Successful Employment) Project RISE at Children's Mercy Hospital provides supported employment for young adults with disabilities and opportunities to acquire work experience through volunteerism. We will discuss strategies used to support participants with ASD and two parents will share information about their family member's experience. F 900
Dr. Linda Heitzman-Powell, Ph.D., BCBA, Director of Research, Center for Child Health and Development, University of Kansas Medical Center OASIS Parent Training: Development and Implementation with Parents of Young Children with Autism
This presentation will discuss the development of a distance parent education series designed to provide parents with knowledge and implementation skills necessary for an evidence-based approach to intervention. Information will be presented regarding participant's characteristics, implementation strategies, coaching sessions, and outcomes. Implications will be discussed regarding further dissemination.
F 900
Holly Dressler, M.S.Ed. and Charlotte Walker, Johnson County Community College Helping Students with ASD Succeed in the Community College Environment Come participate in an interactive discussion on the types of programs and support available at JCCC. The recent partnership with K-Cart, the Blue Valley, Gardner, JCCC TIPS program, and the development of autism awareness at JCCC will be discussed. F 900

Rene Jamison, Ph.D., Clinical Assistant Professor, Center for Child Health and Development, University of Kansas Medical Center

Matt Braun, M.A., CCC-SLP, Faculty, Center for Child Health and Development, University of Kansas Medical Center

Promoting Social Competence in Adolescents with Autism, Part 2 This presentation provides an overview of evidence-based strategies for promoting social skills and social competence in adolescents. Presenters will provide a discussion of strategies as well as rationales for including these strategies within programs for individuals with ASD. Expect example curriculum, strategy demonstrations and models, evaluation tools, pictures, support materials and documentation in scrapbooks, videos, and participant data, as well as many other helpful resources. Look forward to information about utilizing technology to promote social competence among this population.
Presentation
F 900
Master Deputy Alison Anderson, Johnson County Sheriff's Office Take Me Home Program Focusing on the Take Me Home program-a Law Enforcement only database that assists individuals who have special needs and may have difficulty communicating during times of emergency. This program is designed to help Law Enforcement quickly locate people at risk for wandering and/or assist people with special needs encountered by Law Enforcement by locating their emergency contacts and home address and taking them home. We will also discuss the interaction between Law Enforcement and individuals with Autism, including what training is being done for officers in Johnson County and how we are using the Take Me Home program to have positive interaction with special needs citizens. F 1015
Johnson County Community Developmental Disabilities Organization Developmental Disabilities Services through the Community Developmental Disabilities Organization An overview of services, how to apply, how eligibility is determined, waiting list, funding sources. F 1015
Matt Reese, Ph.D., Director of the Center For Child Health and Development at University of Kansas Medical Center; Kansas Center for Autism Research and Training New Approaches in Autism Diagnosis and Research at the University of Kansas Medical Center For Child Health and Development Matt Reese, Director of the Center For Child Health and Development, and co-Director of K-CART, will offer an overview of new approaches to diagnosis and research at the Center For Child Health and Development, including the team approach to Autism diagnosis, outreach via telemedicine technology and the creation of an Autism research database. F 1015
Dr. Linda Heitzman-Powell, Ph.D., BCBA, Director of Research, Center for Child Health and Development, University of Kansas Medical Center OASIS Provider Training: Implementation with the Kansas State Medicaid Early Autism Waiver This presentation will briefly discuss the background of the autism waiver. Information will be presented regarding provider requirements and training components. Data will be presented regarding numbers trained, capacity building, and outcomes. F 1015

Winifred Dunn, Professor and Chair of the Department of Occupational Therapy Education at University of Kansas Medical Center

Christa Anderson, Ph.D., Life Span Institute, research associate

Rene Jamison, Ph.D., assistant clinical professor, Center For Child Health and Development

Qian Li, Ph.D., research assistant professor, Pharmacology & Toxicology

Community Conversation: Pilot Research in Autism

Learn about the pioneering research on ASD by University of Kansas and Kansas University Medical Center Discovery Grant awardees. These awards, granted by the Kansas Center for Autism Research and Training through KU and University of Kansas Medical Center, fill the urgent need to support cutting-edge pilot research in ASD and attract more scientists to the field of ASD research.

Winifred Dunn, professor and chair of the Department of Occupational Therapy Education at KU Medical Center, is identifying and validating methods for behavioral assessment that reflect brain activity of individuals with autism spectrum disorder, focusing on sensory processing, temperament and brain activity.
Presentation

Christa Anderson is part of a team that is using brain-imaging technology to literally see into the brains of children with ASD while they look at pictures of human faces and toys. This noninvasive technology – fMRI – is available to investigators in only a limited number of research centers, one of them being the KU Hoglund Brain Imaging Center.
Presentation

Rene Jamison, Ph.D., assistant clinical professor, is evaluating an intervention aimed at improving social communication in adolescent girls with ASD in a project called Girls Night Out, social skills and self care program for adolescent girls with developmental disabilities, including autism.
Presentation

Qian Li, research assistant professor of pharmacy and toxicology, is exploring whether or not epigenetic alterations and autistic-like behaviors are caused by environmental factors early in life using a rat model. Li is taking a close look at valproic acid (VPA), a compound found in medications used to treat epilepsy, migraine headaches, bipolar disorder and schizophrenia that has been linked to birth defects in children of mothers who took certain medications while pregnant.
Presentation

F 100
Phoebe Rinkel, M.S., Technical Assistance Coordinator/
Preschool Technical Assistance Specialist
Kansas Inservice Training System (KITS)
University of Kansas, Life Span Institute
Evidence-based Practices for Students with ASD Families and professionals alike want to ensure that evidence-based practices for students with autism spectrum disorders (ASD) are identified and effectively implemented by staff across educational settings. The National Professional Development Center (NPDC) on ASD has identified the evidence base to support 24 essential practices for educators working with students with ASD from 3-21 years of age. Research briefs and online training modules have been developed to support effective implementation of these practices. F 100
Carla Schmidt, Ph.D., Postdoctoral Research Fellow, Juniper Garden Children's Project Increasing Social Competence for Adolescents with High Functioning Autism and Asperger's Syndrome (HFA/AS). Deficits in social competence are a hallmark feature of HFA/AS. Adolescents with HFA/AS are particularly vulnerable to the negative outcomes of this impairment due to challenges often synonymous with adolescence. This presentation will explore some of the current interventions that have shown effective in increasing social competence for adolescents with HFA/AS included results from a multiple treatments design study using peer-mediated interventions. Social competence strategies will be presented. F 100
Scott Adams Future Planning for the Special Needs Child This workshop will help parents to better understand the planning which our children will need during all stages of life. We will cover what Social Security is, if your child is eligible and why it is important for our children to obtain these benefits. We will focus on using Special Needs Trusts to protect assets for our children and retain the benefits granted under Social Security. The workshop will address many of the concerns that parents have as they are trying to ensure quality of life for their children. We will be reviewing guardianship and alternatives to, explain how to create a blue print for providing care for the child after the parents are gone and help you understand how planning for your special needs child is different both legally and financially. F 100
Nan Perrin, Ph.D., BCBA, Integrated Behavioral Technologies and Louis Heinz Early Intensive Behavioral Intervention: Strategies to enhance effectiveness of home teams. Early Intensive Behavioral Intervention has a strong research base. One area that is under-studied is team management and contextual fit. This presentation will share some strategies to ensure implementation and integration of the strategies for EIBI into home settings. Recruitment, retention and implementation from a family point of view will be shared. F 100
Nick Wood, Disability Rights Center Update on Supports and Services for Kansans with Autism and Other Developmental Disabilities Nick Wood, Systems Change Coordinator and Lead Investigator for the Disability Rights Center of Kansas (DRC), will present on the current status of supports and services for Kansans with Autism as well as up-to-date information about current and near future changes to the state system. Topics will include a summary of past gaps and barriers to community inclusion and a positive vision for what our expectation are for a system that works. The DRC is the federally mandated Protection and Advocacy agency for the state of Kansas. DRC is active in providing direct legally based advocacy to Kansans with disabilities and active in efforts to improve our state's public policy under Medicaid, IDEA, and the Rehabilitation Act and other important federal laws. F 215
Phoebe Rinkel, M.S., Technical Assistance Coordinator/
Preschool Technical Assistance Specialist
Kansas Inservice Training System (KITS)
University of Kansas, Life Span Institute
Talking with Parents about Autism Participants will find resources to help them learn to recognize possible "red flags" for autism spectrum disorders. Conversations starters and talking points will be demonstrated and online training materials provided to assist early care/education personnel in sharing their concerns and observations with family members in a sensitive and competent manner. F 215
Dr. Jessica Hellings, Professor, University of Kansas School of Medicine, Department of Psychiatric and Behavioral Sciences, University of Kansas Medical Center Psychiatric and Behavioral Comorbidities in Intellectual and Developmental Disabilities This session will 1) describe behavioral presentations of psychiatric illness in people with ID; 2) outline common psychiatric illnesses in this population, and 3) discuss management strategies: Drug and non-drug treatments. F 215
Norm Ledgin, Author, Advocate People With Autism Who Changed the World This presentation cites men and women in history whose characteristics match the current criteria for a diagnosis of Asperger's Syndrome. Each is known for unique achievements in spite of his or her differences----or because of them.   F 215

Saturday Keynote

Eustacia Cutler Yes, Your Child is Autistic. Who is Your Child? Who are You? S 900

Saturday Sessions

PRESENTERS SESSION TITLE DESCRIPTION DAY TIME
Jennifer Potterfield, BCBA, Kansas City Behavioral Analysts Problem Behaviors in Children and Adolescents: Why They Exist & How to Treat Them Problem behaviors are a common problem in many children with Autism Spectrum Disorders. Why do they occur and what can be done about them? Behavior Analysis is a powerful tool in helping us to not only understand the function of problematic behaviors, but also how to change them. We will discuss functions of behavior and reinforcement contingencies, as well as extinction. S 1015
Lisa Barrett Mann, M.S.Ed., and Ana Rankin, M.S. Ed., Marillac Center Social Skills Training for Children and Adolescents with Asperger Syndrome—In the Classroom and Beyond Teaching social skills to kids with high-functioning ASDs doesn't require a graduate degree or thousands of dollars in specialized training. All it takes is a straight-forward approach and an understanding of how these kids experience the world. The presenters will walk you through their tips and tricks for classroom and home, as well as share some outcome data from the Discovery outpatient social skills program at Marillac. S 1015
Michael L. Wasmer, DVM, Dipl ACVIM
Autism Speaks, Associate Director, State Government Affairs
Legislative Update Mike Wasmer from Autism Speaks will provide a legislative update regarding national and statewide issues impacting Kansans with Autism and their families, including the latest information on Autism Insurance Legislation. S 1015
Charles Greenwood, Ph.D., Director, Juniper Gardens Children's Project and Judith Carta, Ph.D., Senior Scientist, Juniper Gardens Children's Project, The Mission Project: A Community Living Solution for Adults with Autism Spectrum Disorder and Other Developmental Disabilities. The Mission Project developed when a group of parents of young adults with disabilities decided that they needed a new alternative for independent living for their daughters and sons. This presentation will describe the rationale and history of the Mission Project, outline how it works, and provide data showing the difference it has made in terms of growth in various aspects of participants' independence. Finally, it will share information about plans for replicating the Mission Project model. S 1015
Diane Bannerman-Juracek, Ph.D., Community Living Opportunities Living the Good Life: Adult Community Living in the Family Teaching Model The Family Teaching Model (FTM) is a residential model for adults with autism and/or other developmental disabilities that offers community living with trained support. Adults either live with trained families in the family's home or in a duplex with 2 housemates and a supporting family in the adjacent duplex home (with a door built in between). Individuals living in the FTM enjoy individualized daily schedules, learning new skills, opportunities for self-determination, relationship-building, exploring new activities in the community, and activities at CLO's 'Midnight Farm'. S 100
Lisa Barrett Mann, M.S.Ed. and David Mann Growing Up with Asperger Syndrome, from a Mother's and Son's Perspectives ASD interventionist Lisa Barrett Mann, M.S.Ed., and her son David (15) will discuss what life has been like before and since his diagnosis of Asperger syndrome at age 7. They'll share the story of the fears, frustrations, and triumphs they've experienced as David has emerged from his inner world of superheroes and anime' characters to become a well-adjusted high school honors student (who still loves comic books and video games). S 100
Glenn Hemberger, DDS, M.S. and Marcia Manter, Oral Health Kansas Oral Health for Children with Autism Daily oral hygiene and dental visits create opportunities and challenges for children with autism. With knowledge and experimentation, families and caregivers can teach each child to have good oral health for a lifetime. For more information contact www.oralhealthkansas.org S 100
Debra Kamps, Ph.D., Life Span Institute and Juniper Gardens Children's Project, University of Kansas; Kansas Center For Autism Research and Training Peer Networks for Children with Autism in Elementary School Settings, Part 1 Social and communication skills deficits are a defining characteristic of children with Autism Spectrum Disorders (ASD). This two-part session is based on the premise that social competence with peers, literacy, and adaptive behavior in small group settings are fundamental and pivotal skills for school settings; and further that social competence and interpersonal skills must be taught similar to academic skills. Part one will describe Peer Networks, a rationale for including typical peers, and give examples of 1) play groups, 2) lunch networks, and 3) recess networks. Published curricula will be shared, along with examples of visual cues. S 100
Kathleen Olson, Ph.D., Associate Scientist, University of Kansas Life Span Institute, Parsons Think College Kansas College can provide opportunities for people with autism or intellectual/developmental disabilities to develop independence, expand interests and acquire job skills. This presentation will provide an overview of the issues and options for individuals with intellectual disabilities who wish to attend college in Kansas. Examples of successful experiences, funding possibilities and challenges will be discussed. S 215
Kate Duffy, M.S., Adjunct Faculty Member, Metropolitan Community College, Author and Judy Bumpus, Bloom Business Consulting Building Your Own Business For many people with disabilities, self-employment is a viable path to workng, with more than 500,000 people with disabilities nationwide reporting they are self-employed. A number of government and nonprofit organizations provide support for these small businesses, including Vocational Rehabilitation, Small Business Development Centers, and the Social Security Administration. Find out how to start and maintain a successful small business in this hands-on workshop. S 215
Debra Kamps, Ph.D., Life Span Institute and Juniper Gardens Children's Project, University of Kansas; Kansas Center For Autism Research and Training Peer Networks for Children with Autism in Elementary School Settings, Part 1 Part two will be an extension of the initial Peer Networks session. The second part will include more examples of Peer Networks, video clips demonstrating social skills instruction, and the use of self-monitoring, and child outcomes. S 215
Rachel Freeman, Ph.D. and Kelcey Schmitz, Kansas Institute For Positive Behavioral Supports Key Features of Positive Behavior Support in Home, School, and Community Settings

This presentation will begin with a case study example describing what positive behavior support looks like when implemented across home, school, and community settings. The focus will be on the key features or standards of an effective PBS plan. Presenters will then share how positive behavior support (PBS) is being implemented in different regions across Kansas. Information will be provided describing how the state of Missouri is currently developing interagency state and regional action planning that will increase opportunities for collaboration across home, school, and community settings.

S 215
Tammy Kravits, Ph.D., Consultant, Partners in Behavioral Milestones Positive Behavioral Supports in Group Homes This session will focus on assessment and evidence-based strategies for addressing problem behavior. The presentation will include case studies of youth who displayed high levels of aggressive behaviors in group home settings. Intervention strategies, data and ongoing positive supports will be described. S 215
Marziah Karch, M.S., Senior Educational Technology Analyst
Johnson County Community College
Hack Your Own Autism Technology We know in the ideal world insurance and government programs will pay for the assistive technology you or your child needs, no matter how expensive that solution turns out to be. We also know we don't live in the ideal world. This session will explore lower cost solutions for assistive technology using consumer electronics like iPods and Nintendos. We'll also look at free and low cost software and Web apps that may help with routines, learning, and communication needs at home, at school, and in the community. Information on this session can be found at http://bit.ly/hackautism. S 330
Debra Kamps, Ph.D., Director, Kansas Center For Autism Research and Training; Tammy Kravits, Ph.D., Partners in Behavior Milestones; and Sean Swindler, M.S.Ed., Kansas Center For Autism Research and Training Community-Based Social Networks for Teens and Young Adults with ASD: The Beginnings and Future Directions Adolescents and young adults with ASD often receive limited services and supports for community participation and social networking. This session will describe examples of "social networks" for teens with ASD: The Johnson County Community College ASD Support Club and two community-based programs. A description of the networks will include community contacts for establishing groups, membership and recruitment, activities, social skills, and facilitator supports. Panel members will discuss successes and challenges and ideas for expansion. S 330
Kate Duffy, M.S., Adjunct Faculty Member, Metropolitan Community College, Author Developing Talents: Helping Young People Discover their Right Livelihood Work plays a major role in most people's lives; yet, most people with disabilities
are unemployed or seriously underemployed, despite their intellectual
ability and qualifications.
S 330
Dr. Mark Foster, Johnson County Community College The Echoing Practice: Meditation for People with Autism Enjoying a heartfulness meditation, one which is spiritually heart-centered, is all that is required to participate in this informal session. These suggestions are mostly aimed at folks who are still searching for a successful practice. You are encouraged to introduce your own variations and, through experience, to find what personally works for you. S 330

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